It all started one morning at about 5 am. I woke up with excruciating pain shooting down my leg and focused in my lower back. The pain was soo bad, taking my breath away I tried to sit up but I couldn't. I knew this pain, but this was horrible. About 10 years or so ago I had a horrible injury at Staples. I was working on the ladder going up to get a machine for a customer. A small printer if I can remember correctly. Well when I turned to let her know I was coming down a huge machine fell from behind me, I turned just in time to catch the box and in turn was slammed up against the edge of the lift. I felt a pop a deep burn in the back but at the time I didn't think anything of it. I had to catch this box see the lady beneath me would have been hurt soo bad being that she was elderly and little and this box could have really done damage. It was the next morning that I woke up and could barely move my right side. It ended up I herniated two discs with that catch.. I ended up having to have surgery at 18 and had a really long hard recovery.
Let us flash forward back to the morning about 9 months ago.. October 10th or around there I think well anyways I woke up and couldn't even sit up. I slid to the side and got up slowly after about 20 minutes building up the strength to will through the pain. I couldn't straighten up. I tried the door frame stretch, I tried the floor stretch everything I could think of. Nothing worked, just a constant searing pain that at this point just made me start tearing in horrid pain. I ended up driving myself to the Critical care center at one of the hospitals near by. Turns out they couldn't help me due to the level of pain I was in and the clear agony I was experiencing so I jetted down the street limping into the main hospital. It was horrible.. they tried everything even morphine and nothing helped the pain. Finally with a combination of medicines they were able to take away the breath taking agony I was in. Since then I have been in and out of the hospital each time them telling me there's nothing more they can do for me since they tried the strongest medicines to help take away the pain.
I went to all the specialists all the "best" doctors trying to find some help. I was hoping that one of them could do something. All of them came up with a different plan of action only one of them coming up with a plan I believed would work and I felt they actually knew what they were doing. I ended up seeing Dr. Simon which was a spinal specialist and surgeon. He was hard on the case trying to help me. We ended up setting a plan of action with a pain management specialist that I've been seeing since the initial injury. In the mean time I tried several epidurals which proved to be as useful as a asshole on my elbow. They provided no relief.. actually on the quest to find medicines that would help my pain I've had several horrible allergic reactions to the medicines. One of them so much fun that it caused a full body allergic reaction of horrible painful and itchy rashes all over my entire body. This was a real treat since I was at a constant 9 level of pain shaking in pain and now covered head to tow in this rash of wonder. Well while in the hospital they tried a second epidural which the doctor administering this shot ended up hitting my nerve direct.. I screamed in pain the shot ended up spiraling me into such pain that I cried and shook for 5 hours straight while they tried with a combination of morphine and other drugs to try and lower the pain to make it to at least where I could breath without shaking and crying.
The level of drugs it took to even put a dent in my severe pain nearly killed me as one night my heart nearly stopped and they called a code blue. I was given nitro and shots to get my heart back to a safe level. Since then I've been in a state of tachycardia where my heart rate is so fast that any time I am stressed I have intense dizzy spells and my chest hurts. So now I am on blood pressure medicine to help try and manage my heart rate and blood pressure.
I am just putting a dent in all that I've been through but here I am 9 months in, I'm on about 8 different medicines to help with all the sudden problems and the severe pain. At best this medicine I am on now takes the pain to about a 7 or a 8 on the pain scale of 1-10. I go to bed in horrible pain and I wake up in horrible pain. There is rarely a moment of peace. Now I am a very positive person and growing up with my mother that was handicapped and through a unfortunate wringer of health problems and 5 hip replacements. I always admired her strength and how through all the shit and pain she still managed to smile and be happy. I adapted this state of mind, being strong and always positive. I try my best to remain myself despite at times not having the strength I try.. to live.
I am at the point now where I am going to try acupuncture as a last attempt in the pain management field.. this week I am planning on making another appointment with the surgeon and presenting him with the results of the EMG test and see what he says what if anything we can do to end this non stop agonizing pain.
I don't know if I explained this.. but up until the morning of horrible pain I was a successful operations manager at a local community bank. I loved my job having built a legacy and working up from the ground up I had built several strong relationships and looked to the future in hope and dreams of growing more and more. Well due to this handicap I couldn't go to work anymore it was hard enough to get up out of bed to just move to the recliner in the living room. My work was understanding at first giving me the time I needed, the medical leave that was part of my employment. Though when this time ran up they quickly got back to the point of business and forced me to resign. I was devastated after giving 7 years of my life dedicated to their mission and company. At the end of the day it was all about business and they forced me without hesitation. So there I was at 29 suddenly unemployed. Also at the time I was going part time as a student back to college. Now to dip into the matter of college I was soo excited going back. I never went to a real college. I got caught in the money pit that was community college and the trap that it is it drained me and gave me now hope. But because of my wife's support and that of my friends I decided to go back to school as an adult and pursue my degree. I fell in love with academia and the real environment of learning and learned people. I LOVED college and was blazing through with all A's proudly. So as I am sure you gathered because of this horrible pain going to college was not an option.. and there I was again at 29 now having to withdraw medically from college. Two of my dreams shattered all because this chronic pain that was unrelenting.
Thank goodness I had signed up for long term disability with my employer and that kicked in after a huge delay mind you! Now the package I had for this was 60% of my pay. It was a huge kick in the balls for me and my wife's financial standing. This was soo sudden and hit us soo hard we struggle every day since that morning scratching together the money for our rent and bills its been so hard on the both of us. I tell you I have so much sympathy for the older folks that are expected to live on social security. As I've mentioned in other posts I live in Fairfield County Connecticut, if you don't know it's literally the richest county in the US and the specific town I live in is ridiculous! The prices for a one bedroom for example average about $1400 and thats an average of 500 sq. ft. So yeah.. and we live in a one bedroom apt.
I never thought in a million years this is where I would be.. at 29 forced to resign and drop out of school waking up every morning in excruciating pain and up most nights unable to rest. As you'll see by the time stamp of this blog this is another late night where I am in just soo much pain I can barely function. One of the most frustrating things as I mentioned earlier I am always positive I always try to be bubbly and happy despite the awful pain. Now for some reason some people consider that as a sign that I'm not in that much pain and that just drives me up a wall. Just because I don't show the pain by crying and moping doesn't mean that I am not internally screaming in agony. This whole experience has sucked soo much I cant tell you how frustrating the whole thing has been. The doctors having no answers.. the medicines harming my body more then doing good.. the horrid drug allergies.. added symptoms and even a random bought of Listeria its just been hell.
I pray to the gods that they will soon bring me some peace. I am terrified and uncertain.. the pain weighs heavily on my heart and its taking such a toll on my body and mental state. It's soo hard to stay positive when there is soo much fuckery and obstacles for handicapped people. I mean the hoops I have to jump through just to get my medicine. The way that every doctor in the medical field over charges and looks for any way to fuck with your finances is ridiculous. The fights i've had with insurance companies just to get help... to get tests I needed just to help diagnose me. It's been such hell.. I am just soo grateful for my wife. I don't know what I would do without her. Through all of this she's been my caretaker and my rock. She's pulled me back to reality when I float off in a bought of pain. She's been our financial rock as well getting everything in order and always having the money no matter what. We have had to sacrifice soo much its been hell.
I don't have a supportive family, I actually don't have any family to help me if I needed. My parents are both going through a disgusting brutal divorce where they are busy trying to destroy each other in a jealous rage its just such a circus so I've had to cut them both out of my life. They are extremely selfish I'll give you one good example.. they both know that I had to go through all of this and through the 9 months to day I can count how much they have been by and helped me if you'd call bringing a sandwich help on one hand. Two hands between the two of them. As far as my wife's family well her moms been here for us, but if your following my blog you'd know now that of course now I am the Anti-Christ so shes no longer here to support us.
I'm just soo tired, there has been no break everything is such a fight and when im in this pain I cant even form a thought at times so the last thing I want to do is battle for the simplest thing. I am currently in the process now of applying for social security because I have to at this point. Let me tell you the zoo and craziness that comes with that whole process. It's disgusting how difficult they make it, there is no break for chronically handicapped people its all just a fucking clown show.
I hope we get a break soon, between the horrible pain and constant fear of not being able to pay our bills.. I just have one constant and at this point I count my blessings for that and that's the love of my life my wife. I am soo lucky.. I love her soo much and the only comfort I have is knowing she's at my side through this. Thank the gods..